Oh it's a Jolly Holiday...

Hey there! Me again (obviously!)

I've finally had over 1,000 views! So thank you to everyone whose read the blog, it makes me real happy to know that after 12 blog posts of me blabbering on about stuff, people are still coming back and reading more :) so thanks! :D

So, at the moment, it's the Summer holidays for me because I've finished uni for the year, and, naturally, I'm trying to actually enjoy myself and do nice things. Which I have! Don't get me wrong, yesterday I went to Flamingo Land, a couple days ago, the beach, and just generally been spending time with friends and family.

Although I've been having a smashing time, it's hard to keep cheery when at the end of the day my joints are in SO MUCH PAIN! I hate that a normal days activity can cause me so much pain, I want to be able to hop, skip, jump around to my hearts content and I can barely walk around for a day without it giving me grief.

Nonetheless I just keep smiling (and maybe complain a little), because I can't let pain stop me from having fun (to an extent) and can't just give up because it hurts. I just want to have a jolly Summer without all the pain...  :(

Hopefully soon a doctor can help me, or my medication can start working again, fingers crossed!

Keep smiling!! (I do try to!) :)

TTFN, ta ta for now!

The ridiculous cost of prescriptions!

So, I've just forked out £104 for a years worth of prescriptions! Yippee, this is the delight of becoming an "adult" and having to pay for prescriptions from the age of 19. 

I'm not eligible for free prescriptions so, I've had to buy myself a PPC (Pre-Payment Certificate) to save myself a bit of money when buying prescriptions, because without this it's £8.05 per prescription, and at current I'm on 3 prescribed drugs every month. Overall that would be £24.15 a month, or around £289 for a year... Personally, I think it's completely ridiculous to have to pay for prescriptions that I don't voluntarily take... I don't want to take all my medication, I'd be a lot happier to not have to, and on top of that it costs so much? 

This probably stops a lot of people taking medication they should be taking, because why would anyone want to pay for something they don't really want? (even if it's for the best for them)... It just really annoys me, if I'm reading this correctly (from google), if I was a prisoner I'd have free hospital treatment and prescriptions? (correct me if I'm wrong) But things like this make you wonder why you bother trying to live life as a law abiding citizen when I could have such things for free? Most of the medication (in fact, probably all) I will be on for the rest of my life (unless a recovery is achieved) and I will end up dishing out thousands of pounds for medication for the rest of my life.

I'm gonna stop ranting for now, because no one wants to read rants. But naturally, this is annoying to me (and probably MANY others)... So yeah!

TTFN, ta ta for now! :)

So tired!

I've had such a good couple of days, but it's been so tiring! This time it's not my sleep that's made me tired (I've actually slept quite normally recently, yey!) This time the thing that's making me tired is having a life.

Yesterday and today, I spent the day just out and about, pretty averagely really, not doing anything too tiring, and I'm absolutely shattered! This is another side effect of juvenile arthritis, fatigue! And its a really annoying thing to have as a child/teenager, because we just want to be able run around and play, and keep going without getting ridiculously tired.

Personally it just makes me feel lazy, because I feel tired from doing anything, whether it be nothing or a day full of everything. It's also not great because, just because you're tired out, it doesn't mean you necessarily sleep well, and it also usually includes achey joints, which is never fun.

So, basically, make sure you know your limits, if you're tired or achey don't push yourself too much, and take things at your own pace. It's always best to look after yourself and know what you should or shouldn't do. (even if it sucks, because you want to do everything, like me!) Time for me to sit and chill for a bit I think!

Thanks for reading :)


TTFN, Tata for now!

P.S. I'm writing blogs from my mobile now for a while so sorry if layout/font is bad, I'll edit it all to be nice when I'm on a computer with internet!

SLEEEEEP!!

So recently, I've had the worst sleeping "pattern" EVER.

Basically, initially, due to my joints being bad (especially at night time/ morning time) it made me manage to get to sleep later and later gradually as I found it difficult to sleep because of the amount of pain it was causing me. Now all of that aside, I can't sleep until silly times no matter what. For instance, today I finally managed to get some kip at about 12pm until about 3pm. But normally recently it's about 7am that I sleep and 2pm that I'll finally arise.

In my opinion, this is ridiculous, but this is just another side effect of having arthritis unfortunately. I like to sleep on my sides, but because of the pain it causes I have to choose whether I'd rather my ankle, hip and jaw hurt or my knee, hip and shoulder. It's a difficult decision that generally leaves me tossing and turning constantly to make myself comfy.

I hope this gradually gets better, as I really don't like being so tired all the time, and also spending most of my day time asleep, it just leaves me with no motivation to do anything. So I just end up sitting there, not doing much for the day (and also not eating properly as I'm not awake for breakfast/lunch so I just skip to dinner... which is also pretty bad.)

So, please please, start feeling better joints! I really don't like being a lazy person (believe it or not) and would like to be remotely active this summer, no just bed-bound. So if anyone has any suggestions to help my sleeping pattern get back to normal, that would be great! Because I'm clueless...

TTFN! Ta ta for now from a tired Molly!