Monday 6 March 2017

I'm Having a Good Day...

Hey there! I hope you're well! Like I said in the title, I'm writing this because I'm having a good day. (Well, as good as a day with a blood test in it can be!)

I've been meaning to post a blog update for a little while because everything's been happening lately! But the side effects of all my medication have been a little poo, and I didn't want to write a moody blog, so I thought I'd wait! But it's finally time, and I'm going to format it like I did last time I think, because it made it a bit easier to read (in my opinion - but let me know if you disagree!)

Image from www.arthritisresearchuk.org
So, firstly... I've finally seen an Orthapedic about my silly immovable ankle and he's going to refer me to someone in Grantham hospital about doing an ankle athrodesis (a.k.a. ankle fusion) on me. Here's a picture of what an ankle fusion looks like... Basically they clean up the inside of your ankle joint and use screws to put it in a good position, that should no longer cause any pain... But you sacrifice most of your ankle joint movement... I don't have much of that anyway so that's all good with me. My ankle has actually already fused itself essentially - but because it's done it in a way that was "comfortable" for me it's not at a very good angle and makes it difficult for me to walk. Basically it'd be good because it'd hopefully get me walking without aid again (and my gosh, I would love that!) Walking with crutches is so darn tiring!

And on that note, I started Physio last week for my ankle and knee! I got set some exercises to strengthen my knees/hips so they're a bit more ready for if I have the surgery. I also got a pair of gutter crutches to test out as I was struggling with normal crutches due to my left elbow not straightening. They basically give you a bit to rest your whole forearm on, and straps it down with a handle at the end, so the pressure is more on your upper arms/shoulders instead of your elbows. So far they've been great! I can walk a lot further with them without having to stop for breaks as they're causing less pain, so it's less exhausting. They are a bit heavier than normal crutches though, and I can feel it in my upper arm muscles today! With a bit more practice I should be fine though!

I started back on Methotrexate a few weeks ago, so now I'm on.... Humira, Methotrexate, Prednisolone (steroids) and Folic Acid for the Arthritis, and the pill (because you have to be on some sort of contraceptive while on Methotrexate) and Cetirizine because I appear to be allergic to the red ink in my tattoo...All the pills! (It could be worse) But I'm getting plenty of horrible side effects - I've started making a list in my diary ready for when I see my nurse next. I had my first Migraine.... OUCH! I apologise if I've ever called your migraine a headache.... They're so painful! I've had headaches too, swollen/heavy eye lids, heartburn, and a whole lot of nausea. Booooooooo!! But I'm getting on with it like a good girl so I don't get told off by any rheumatolagists! 

Just so you all know, I've recently started blogging for Arthur's Place - a magazine and social network for young people with Arthritis. You can find my blog at: http://arthursplace.co.uk/the-life-of-a-spoonie/ but I would definitely suggest you give the other blogs a read too! And if you suffer with arthritis yourself join the group on Facebook - Arthur's Place Social, it's honestly been so useful to me and to many others to have someone to talk to whose in the same boat.


And that's all from me this blog I suppose... Oh yeah! Except news for anyone who doesn't already know - Simon and I got engaged! Which is all exciting and awesome! So my new aim is to get myself walking unaided ready for me to walk down the aisle! So it's all happy days for me! I'll be back again soon, but in the meantime, don't forget to check out my blog on Arthur's Place! (I manage to blog a little more often there as someone prods me to get it done! Haha!) But maybe that'll spread and I'll manage to blog here more often, who knows? 

Right, TTFN, Ta ta for now! :)
 

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