Doctors obviously love me...

.... as I got 'double booked' the other day!! HAHA xD probably not really that funny, but I found it funny... got a text saying I had an appointment a few days after and I was just, confused, as my letter said it was in March... so I rang up to ask and it turns out they'd just accidentally booked me in twice, but only sent me a letter for one. Weird! 

So yeah, the cold sucks, I went for a blood test on Tuesday, just for all my veins to be in hiding because it was too cold, so unfortunately that appointment was a waste of time and now I have to journey up to the hospital for it to be done there instead, which I'm sure will be jolly... (I still have a scar from the last time I had it done at the hospital as their plaster thing took off my skin!!! >.<)

This last weekend my knee got a bit swollen and achey, probably from a mix of the cold and a heck of a lot of standing around (as I did a show called Rosencrantz and Guildenstern are Dead this weekend, and the backstage area wasn't the nicest to be in, as it was a bit smalllll), but thankfully, after some looking after it with hot water bottles & baths, it's all feeling better now! 

The cold just isn't very nice, it hurts and I HATE walking on ice as I'm just not very good at it! haha

well, keep safe in the cold weather!
TTFN, Ta ta for now!!

Time to Get Fit!

Hey there readers!

Today I finally received the exercise bike I ordered and it's all exciting!

This is the bike I'm going to use to hopefully improve my leg muscle strength, because with having arthritis in my ankle and knee, it causes limping, which means some muscles will be wasted and others will be relied on too much... So my aim is to try and even it out and make them all stronger and perhaps make walking easier.

It's also to keep fit in general (because I'm so lazy!) and don't want to be any more to be honest! I'm hoping to be more active in general in my second year in uni, hopefully starting climbing and I'm considering lots of other sports, so fingers crossed for my joints to keep all good for them!

On the note of my previous joint injection, I still haven't had much improvement in my knee, it's still swollen and a bit painful, so we'll see what the rheumatolagist nurse says about that when I go see her (I'm still waiting for that appointment), I hope they approve of this new activeness!

Cheers for reading!

TTFN, ta ta for now! :)

Hey there!

Hey there! Sorry for the delay, I was internetless (that's not really a word, but heyho!) for a while, but now I'm back, in my new house for my second year of uni, and with internet again!

So, today has been a day of progress, because today I finally got to see a rheumatologist here in Lincoln, and, it was eventful to say the least... I just expected to discuss the options for the future of making my arthritis a bit better, but with that, I also got a steroid joint injection in my knee, followed by 10 minutes of being lightheaded and feeling very poorly (I do not deal well with injections!) especially seeing as this was the first time I'd had a joint injection with out pain relief such as laughing gas or general anaesthetic, but unfortunately, this is what 'adulthood' entails! And then to add to my sorrow of a joint injection, a nice trip to phlebotomy for a blood test! woohoo! But on the upper hand, the pain from my knee probably made me deal with this blood test the best I ever have!

So now I'm sitting on my bed feeling pretty sorry for myself as I can't bend my knee, and hobbling is no fun! Sad times, but on the happy side, this should hopefully generally bring the swelling and pain down in my knee, BUT on the unhappy side, I have to go back in a few weeks for another one in my ankle! :(

But apart from being a bit sore and achy at the moment, I've been having a good summer holiday, which is always good news and I'm hoping for the best from this hurty joint injection!!! Fingers crossed for a near future of not limping!

I'll keep you posted on the joint injection and my knee (I'm not leaving you this time!)

TTFN, ta ta for now!! :)

Oh it's a Jolly Holiday...

Hey there! Me again (obviously!)

I've finally had over 1,000 views! So thank you to everyone whose read the blog, it makes me real happy to know that after 12 blog posts of me blabbering on about stuff, people are still coming back and reading more :) so thanks! :D

So, at the moment, it's the Summer holidays for me because I've finished uni for the year, and, naturally, I'm trying to actually enjoy myself and do nice things. Which I have! Don't get me wrong, yesterday I went to Flamingo Land, a couple days ago, the beach, and just generally been spending time with friends and family.

Although I've been having a smashing time, it's hard to keep cheery when at the end of the day my joints are in SO MUCH PAIN! I hate that a normal days activity can cause me so much pain, I want to be able to hop, skip, jump around to my hearts content and I can barely walk around for a day without it giving me grief.

Nonetheless I just keep smiling (and maybe complain a little), because I can't let pain stop me from having fun (to an extent) and can't just give up because it hurts. I just want to have a jolly Summer without all the pain...  :(

Hopefully soon a doctor can help me, or my medication can start working again, fingers crossed!

Keep smiling!! (I do try to!) :)

TTFN, ta ta for now!

So tired!

I've had such a good couple of days, but it's been so tiring! This time it's not my sleep that's made me tired (I've actually slept quite normally recently, yey!) This time the thing that's making me tired is having a life.

Yesterday and today, I spent the day just out and about, pretty averagely really, not doing anything too tiring, and I'm absolutely shattered! This is another side effect of juvenile arthritis, fatigue! And its a really annoying thing to have as a child/teenager, because we just want to be able run around and play, and keep going without getting ridiculously tired.

Personally it just makes me feel lazy, because I feel tired from doing anything, whether it be nothing or a day full of everything. It's also not great because, just because you're tired out, it doesn't mean you necessarily sleep well, and it also usually includes achey joints, which is never fun.

So, basically, make sure you know your limits, if you're tired or achey don't push yourself too much, and take things at your own pace. It's always best to look after yourself and know what you should or shouldn't do. (even if it sucks, because you want to do everything, like me!) Time for me to sit and chill for a bit I think!

Thanks for reading :)


TTFN, Tata for now!

P.S. I'm writing blogs from my mobile now for a while so sorry if layout/font is bad, I'll edit it all to be nice when I'm on a computer with internet!

SLEEEEEP!!

So recently, I've had the worst sleeping "pattern" EVER.

Basically, initially, due to my joints being bad (especially at night time/ morning time) it made me manage to get to sleep later and later gradually as I found it difficult to sleep because of the amount of pain it was causing me. Now all of that aside, I can't sleep until silly times no matter what. For instance, today I finally managed to get some kip at about 12pm until about 3pm. But normally recently it's about 7am that I sleep and 2pm that I'll finally arise.

In my opinion, this is ridiculous, but this is just another side effect of having arthritis unfortunately. I like to sleep on my sides, but because of the pain it causes I have to choose whether I'd rather my ankle, hip and jaw hurt or my knee, hip and shoulder. It's a difficult decision that generally leaves me tossing and turning constantly to make myself comfy.

I hope this gradually gets better, as I really don't like being so tired all the time, and also spending most of my day time asleep, it just leaves me with no motivation to do anything. So I just end up sitting there, not doing much for the day (and also not eating properly as I'm not awake for breakfast/lunch so I just skip to dinner... which is also pretty bad.)

So, please please, start feeling better joints! I really don't like being a lazy person (believe it or not) and would like to be remotely active this summer, no just bed-bound. So if anyone has any suggestions to help my sleeping pattern get back to normal, that would be great! Because I'm clueless...

TTFN! Ta ta for now from a tired Molly!